Jacob asks Sarah and Casey to move in with him.
Casey is now ten years old, making Sarah really think about this decision. She
does not want to go into something that is unstable and she has not given any
thought about starting a new relationship with Jacob. Sarah only wants what is
best for her daughter and the best would be having a stable home environment,
but she is not sure if she can provide that by moving in with Jacob.
After being turned down, Jacob then suggests
that they split time a bit more with Casey and she comes to stay with him on
the weekends. He enjoys spending time with her and Casey’s abilities have
improved since he came back into the picture. Sarah needs more time to think
about this as well. Since Casey was born, she hasn’t had much time to herself
and would enjoy being able to spend a weekend with her new boyfriend instead
but she is worried about the two different environments for Casey weekly. She
sometimes still has trouble during transitional periods and is afraid it may be
more stress on her than necessary. Several times a week she will still throw
tantrums when she does not want to move to a new task. Her tantrums are
non-violent at least and only involve her throwing herself on the floor and
refusing to move. Sarah has learned that it is best to ignore Casey during
these times because once she tries to comfort her the tantrums get worse.
However, Sarah does still want to move out of
her parent’s house. She has no privacy and no independence to truly call her
own. She starts looking for apartments nearby to rent. She thinks she may be
able to afford it if she can be approved for government assistance.
Sarah and Jacob partnered to develop a daily and
weekly list of chores and everyday tasks for Casey. They made a check list and
for her reward she receives a sticker when she completes them all—if she
completes a whole week successfully they take her for ice cream or frozen
yogurt. This has really benefited Casey and has helped her remember tasks for
everyday life. She can make her own bed, put her clothes away, put the dishes
away, feed the cat, wipe down tables, and set the table. Sarah and Jacob have
noticed that the positive reinforcement and reward system has truly helped
Casey be motivated and work to achieve these minor tasks that is normal for
most children her age.
The chores keep Casey practicing her fine motor
functions daily causing her to improve greatly over the next year. Even on days
when Sarah wants to give her a break, she remembers back to when Casey forgot
how to write her name over the course of a summer. She can easily forget a task
if not made to do it so Sarah enforces her chores continuously, even on
holidays and special occasions.
Casey’s school life is a transition. She still
has trouble with inappropriate touching of classmates at times but it is
becoming less frequent due to reinforcement by the teaching staff. She must be
told exactly what she is doing wrong and to stop for it to be effective. She
has made one friend in class who is a year younger than her who has moderate
autism. They often prefer to complete tasks while near one another or will play
parallel to each other.
At recess she is very outgoing and energetic;
however, her coordination trips her up at times. One day Casey fell while
chasing a classmate around the playground and fractured her right wrist in the
metacarpal bones. This was a huge setback for her since Casey was right handed
and had nearly mastered writing properly. Other adolescents at this age would
have no problem picking back up where they left off but for Casey, she may have
to relearn a lot of basic skills of writing. This also sets her back on other
tasks around the house she normally completed on a daily basis. The good news
was that Casey would heal quickly and be in a cast for only four to five weeks.
Hopefully, this would be a short enough time span for her.
For the first week, the cast is very frustrating
and Casey requests that it be removed because she doesn’t like it. Her parents
try to explain to her why she has to keep wearing it but she insists that it be
taken off. After some arguing, she becomes irate and will throw tantrums and
try to pull off her cast.
Casey is now eleven and has started to notice more
how children in the other classrooms watch her class as they walk down the
hall. Some of them snicker to themselves and point at them. She doesn’t fully
understand why yet but she knows that it makes her feel very frustrated or sad
usually. They say words that she doesn’t know the meaning of like “retards” and
“freaks.” She asks her teachers what the words mean but they refuse to talk
about it with her. She asks her mother who hesitates but explains that they are
mean names that mean people call others to make themselves feel better. Casey
feels like the other kids are calling her names because she is different from
them but she doesn’t know how.
Questions
1. What are ways for Sarah and Jacob to maintain and continue to
improve Casey’s fine motor functions while her wrist heals? Would continuing to
use her hand expand the healing time of her fracture?
2. How likely is it that Sarah will qualify for government
assistance? Would she be able to afford a rental with it?
3. What are the consequences for an adolescent with FASD when they
have separated or divorced parents with joint custody and travel often between
two homes? Consult the literature.
Decision Point: Does Sarah move out of her parents’ house?
Hage, Deborah.The Lifelong Effects of Fetal Alcohol Syndrome Good
Parenting Is Not Enough. Retrieved June 29, 2014 from http://www.deborahhage.com/articles/fas2.html.
NOFAS.
Living with FASD. Retrieved July 4, 2014 from
http://www.nofas.org/living-with-fasd/.
1) Because her wrist is still healing, Jacob and Sarah should consult the doctor to see what motor skills Casey can still do effectively that won’t set back the healing process of her wrist. Because Casey may forget her fine motor skills such as writing her name, Jacob and Sarah create a rice bin where Casey can practice writing her name in the rice. This way there is not stress on her wrist of holding a pencil, but her mind is still being active, reminding her hand how to write her name. The doctor has also given Casey some exercises that she can do with her wrist that will help increase her strength . One exercise is to have her clench her fists and then re-open them. This is an exercise that Jacob and Sarah try to do with her each morning and night. Since Casey is irritated by the cast and tries to take it off. The doctor recommends that they palce a hard cast on her, that way she wont be able to take it off, and therefore preventing her from damaging her wrist even more. Also, this cast is water proof so they wouldn’t need to worry about taking it off when Casey showers.
ReplyDelete2) Sarah could look into housing choice vouchers. Housing choice vouchers allow very low-income families to choose and lease or purchase safe, decent, and affordable privately-owned rental housing. Sarah could specifically look into the tenant based housing which would allow her to pay a low price while maintaining a safe and decent environment for Casey. Having affordable housing is crucial for Sarah because she doesn’t have much money, but because also because she has the expenses of caring for a child with a disability. Therefore she should look into all the assistance that she can that would enable her and her daughter to live a better life (Housing 2014).
3) Divorce affects everyone involved, but it is often the most difficult for children with disabilities. When custody determinations or modifications involve children with disabilities, the decisions regarding the “best interests of the child” may be even more because all children are unique and may respond differently to divorce. Because of this, lawyers should become familiar with the characteristics of all children in the family—including any child with a disability. This includes the child’s age, emotional maturity, resiliency to change, and ability to cope with changes in family structure during and after the finalization of the divorce. Divorcing parents need to recognize more than just their legal responsibility and be willing to adjust the environment to make it ideal for the child to grow and mature (Parents 2008).Lawyers assisting clients who have children with disabilities should focus on resolving the following critical issues: (1) visitation agreements and transitions between homes; (2) educational decision making; (3) health and medical care, including special therapies; and (4) social and recreational opportunities (Parents 2008). Since lawyers may not have a background education on disabilities, they should educate themselves on the disability so that they will be able to effectively help the entire family. Also, in some families, parents may disagree about how to care for the child, and some parents may deny that the disability exists. Luckily at this point, Jacob and Sarah have accepted Casey’s disability and want to do what is best for her (Parents 2008).
ReplyDeleteDecision Point: If Sarah is approved for government assistance housing, it would be beneficial for her to move out of her parents’ house. Just like Casey, Sarah should practice her independence as well. This would also allow Casey an environment to call home, and hopefully an environment that would remain stable for Casey for her teenage years. As long as this environment is in a safe place, this would be very beneficial. Also if the housing is in a neighborhood, this may be a great environment that would facilitate friendships for Casey. Some neighborhoods have different programs for Moms and for their children that may provide both Sarah and Casey with a social outlet.
Housing Choice Vouchers List - HUD. (2014) U.S. Department of Housing and Urban DevelopmentRetrieved from http://portal.hud.gov/hudportal/HUD?src=/program_offices/public_indian_housing/programs/hcv/about/list
When Parents of Children with Disabilities Divorce. (2008). When Parents of Children with Disabilities Divorce. Retrived from https://www.americanbar.org/newsletter/publications/gp_solo_magazine_home/gp_solo_magazine_index/parentsdivorce.html